Transfatty Lives is a documentary on Netflix made by DJ Transfatty, aka Patrick O'Brien, about his journey with ALS. O'Brien was diagnosed with ALS in 2005 at the age of 31 and decided to make an artistic documentary about his journey. The documentary starts with O'Brien's diagnosis, shows him starting a relationship and having a son, becoming depressed, moving into a nursing home, and moving into an ALS skilled facility. O'Brien opted to have a feeding tube placed and be put on a ventilator. He told the doctor placing the feeding tube that he wanted to be "an electric vegetable", meaning he wanted to live as long as possible. The documentary ends with O'Brien's family and friends saying that the reason O'Brien has lived so long is because he still has a goal to reach, a mission to accomplish. O'Brien has been battling ALS for 12 years. This is an extremely long time to be living with ALS, considering the average lifespan after diagnosis is...
Ella,
ReplyDeleteI am really glad that you got some practice with goni measurements on this fieldwork! We learned that way back in biomechanics, so I am sure it was good to get a little bit more refreshed on that skill. Hand therapy is a really interesting speciality and i'm glad that you got to experience and learn a lot at this as a fieldwork setting! I also am looking forward to hearing more about everyones experience when we get back to campus :) great video!
Ella,
ReplyDeleteThanks for sharing about your experience on our last Level 1 rotation! I also need more exposure and information on insurance because it really does come up in practice more than you think it would. We also had some worker's comp patients and I think their insurance with that works a little differently too, so I am looking forward to learning more about that as well! I am also glad you got some goni experience, because even in acute care, my FWE and I were talking about possibly going back to see certain patients to take goni measurements to put in our evaluations, especially upper extremity related. So you never really know when you are going to need to do goni measurements, so it is a good idea to keep up with those measurements! I can't wait to hear more about it and all the things you learned on your rotation! See you in July!